Beth McKenna's daughter was born with Neurofibromatosis Type 1 (NF1). She's running the Boston Marathon for the Children's ...

Since the discovery of the genes responsible for the different forms of neurofibromatosis, much has been learned about how the various problems associated with neurofibromatosis come about. This opens ...

The event raises awareness of neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and fundraises for NF research through the Children’s Tumor ...

An international leader in advancing neurofibromatosis research, UAB serves as the national coordinating center for the NF Clinical Trials Consortium. This collaborative group of 15 primary and 10 ...

Reivi Dela Cruz was only four years old when he was diagnosed with Neurofibromatosis Type 1 (NF1), a genetic condition that causes tumors (neurofibromas, which are usually non-cancerous) to grow on or ...

The night honors the life and impact of Nick Gilbert with a commemorative bobblehead and a recognition of individuals and families who have been affected by neurofibromatosis. Sunday, the ...

We are grateful for the support from the Children’s Tumor Foundation, a vital partner in this journey, and to the Neurofibromatosis Clinical Trials Consortium for making this clinical trial a ...