WCVB Channel 5 Boston25d
Clinical trial provides hope for Mass. child with rare genetic disorder
THIS IS ABNORMAL. IT’S NOT HOW IT’S SUPPOSED TO LOOK. THE SCAN REVEALED NOAH HAS CANAVAN DISEASE. FIRST THING THAT COMES UP WHEN YOU GOOGLE CANAVAN DISEASE IS THAT THE LIFE EXPECTANCY IS TEN.
The Scientist1y
Slow March Toward a Canavan Cure
Learn about our Editorial Policies. Twenty years ago, Ilyce Randell and her husband received devastating news: their son Maxie, who was a little over four months old at the time, had Canavan disease.
Nature5y
96 The Leukoencephalopathies of Childhood: Findings From a National Prospective Study
Methods: 2802 children with suspected progressive intellectual ... X-linked adrenoleukodystrophy 60, Krabbe disease 39, Canavan disease 16, Alexander disease 13, leukoencephalopathy with vanishing ...
WCVB Channel 5 Boston1mon
Massachusetts families, lawmakers fighting to keep NIH funding for life-saving medical research
NOAH’S PARENTS SAY OTHER CHILDREN DESERVE THE CHANCE TO BENEFIT ... Dr. Terence Flotte said.Noa Greenwood, 4, has Canavan disease, a rare genetic disorder affecting the nervous system, muscles ...