Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
American Council on Science and Health22h
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Florida Politics3d
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Woman diagnosed with rare disease after 'excited' dog accident
An ex-RAF nurse has said that the detection of her rare disease was all thanks to an accidental collision with her family's ...
Med Device Online3d
A Look At AI-Driven Medtech For Rare Disease Diagnosis
Recent advances in AI, including machine learning, natural language processing, and deep learning models, are transforming ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
The Truth About Alzheimer’s Disease and Genes
Here, experts explain genetics in Alzheimer’s and dementia, including if it’s hereditary, how to lower your risk, and ...
Cyprus Mail on MSN1h
Supporting children with genetic diseases ‘crucial’
Supporting children with genetic diseases is “crucial”, Health Minister Michael Damianos said on Saturday.Speaking at an event held to mark World Rare Disease day, he said the event “highlights the ...