Angleman Syndrome Foudations

Community services/non-profits in Aurora, United States
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Services offered

Counseling Services

Frequently asked questions

Q:
Did you do an entrance and exit interview by the caregivers to capture changes that they saw, or did not see, that could have been lost, or not captured, in the endpoints you were using?
A:
Particularly with rare diseases, we believe that caregiver involvement is critical at the early stages of drug development and their insights are shaping our work every day.
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